Table 1 Main characteristics of the study population of the disease perception and QoL survey

Gender

Female

139

Male

68

Age

18–20 years

8

21–30 years

30

31–40 years

66

41–50 years

71

51–60 years

26

61–70 years

6

Age at first symptoms

0–10 years

37

11–20 years

55

21–30 years

57

31–40 years

44

41–50 years

13

51–60 years

1

Time since diagnosis

< 1 years

29

1–5 years

62

6–10 years

41

11–15 years

28

16–20 years

21

>  = 21

26

Marital status

Single

61

Married

96

Cohabitant

27

Divorced

22

Widow

1

Education

None

1

High school diploma

109

Secondary school diploma

33

Degree

42

Postgraduate degree 

22

Working condition

Housewife

11

Unemployed

24

Unable to work

17

Retired

9

Student

15

Employed

131

Full-time/Part-time worker

Part-time

37

Full time

94

Need to change working life

No

71

Yes

136