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Table 3 Unadjusted, Standardized and Adjusted Duchenne and Becker Muscular Dystrophy Prevalence by Participant Characteristics, MD STARnet Expanded Surveillance Pilot, 2007–2011

From: Sources of variation in estimates of Duchenne and Becker muscular dystrophy prevalence in the United States

 

Unadjusted

Standardized1

Adjusted2

Prevalence3

95% CI

Prevalence3

95% CI

Prevalence3

95% CI

All US males

8.96

8.33, 9.64

8.68

8.03, 9.38

8.64

7.97, 9.33

Age (years)

Under 5

11.01

8.58, 14.15

10.17

7.77, 13.08

10.73

8.04, 13.59

 5 to 9

20.50

17.09, 24.58

20.59

16.81, 24.97

19.93

16.26,23.80

 10 to 14

23.37

19.70, 27.73

22.77

18.82, 27.31

22.69

18.72, 26.84

 15 to 19

23.45

19.86, 27.68

23.59

19.51, 28.27

22.65

18.80,26.65

 20 to 24

17.25

14.20, 20.96

15.95

12.95, 19.45

16.61

13.38,20.04

 25 + 

3.32

2.86, 3.86

3.23

2.76, 3.77

3.23

2.74, 3.74

Race/Ethnicity

 Black

5.47

3.50, 8.54

5.49

3.31, 8.58

5.47

3.14, 8.10

 Hispanic

9.11

7.75, 10.71

8.79

7.42, 10.34

8.73

7.29, 10.22

 Other4

14.33

11.33, 18.14

13.49

10.48, 17.09

13.11

10.05,16.37

 White

8.67

7.93, 9.47

8.70

7.94, 9.51

8.70

7.91, 9.51

State

 Arizona

7.84

6.93, 8.88

7.22

6.29, 8.25

7.46

6.52, 9.26

 Colorado

7.66

6.65, 8.82

7.64

6.51, 8.92

7.36

6.19, 9.24

 Iowa

10.08

8.60, 11.81

9.62

7.82, 11.71

9.89

7.89, 12.46

 New York

15.13

12.71, 18.01

13.46

10.90, 16.45

14.30

11.53,18.97

  1. MD STARnet, Muscular Dystrophy Surveillance, Research and Tracking Network; US, United States; CI, confidence interval
  2. 1Standardized to US male population by age and race/ethnicity
  3. 2Adjusted by age, race/ethnicity, site, number of reporting sources, and proportion of cases seen at a neuromuscular clinic. Based on multivariable Poisson model, with confidence intervals obtained from 100,000 random simulations
  4. 3Per 100,000 individuals
  5. 4Includes any race other than Black, Hispanic, or White, including multiple races and missing