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Table 3 Sources and mechanisms of funding of CRNs

From: Towards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force

Sources of funding (% response)

No contribution

Low contribution

Medium contribution

High contribution

Government—Multinational level (e.g. European Union)

53

9

21

18

Government—National level

32

18

15

35

Region

97

0

3

0

City

97

3

0

0

Industry

79

6

12

3

Patient Organizations

82

12

3

3

Academic Centers

56

24

18

3

Non-Profit Foundations

77

9

9

6

Mechanisms of funding (% response)

No contribution

Low contribution

Medium contribution

High contribution

Grant

9

15

35

41

Cooperative Agreement

71

3

12

15

Public–Private Partnership

79

12

6

3

Contract Agreement with Industry

68

9

21

3

Donation/Philanthropy

71

15

6

9

  1. Percentage of clinical research networks sustained through various sources and mechanisms of funding. The level of contribution for each funding source is presented on a scale going from no contribution to low, medium or high contribution. The same rating scale is used for the mechanisms of funding