Table 1 List of clinical research networks included in the analysis
Name of the Network | Geography | Year of creation |
|---|---|---|
Maternal Infant Child and Youth Research Network | Canada | 2006 |
Care4Rare | Canada | 2007 |
Canadian Inherited Metabolic Diseases Research Network | Canada | 2012 |
Canadian Neuromuscular Disease network | Canada | 2020 |
Children's Oncology Group | USA | 2000 |
Rare Diseases Clinical Research Network | USA | 2002 |
American Society of Clinical Oncology | USA | 2010 |
NeuroNext | USA | 2011 |
Undiagnosed Diseases Network | USA | 2014 |
ESCAPE Clinical Research Network | Europe | 1995 |
ERN CRANIO | Europe | 2017 |
Endo-ERN | Europe | 2017 |
EpiCARE | Europe | 2017 |
ERKNet | Europe | 2017 |
ERN-RND | Europe | 2017 |
EURO-NMD | Europe | 2017 |
ERN-EYE | Europe | 2017 |
ERN GENTURIS | Europe | 2017 |
EUROGEN | Europe | 2017 |
MetabERN | Europe | 2017 |
ERN RARE-LIVER | Europe | 2017 |
ERN-RITA | Europe | 2017 |
VASCERN | Europe | 2017 |
NeuroSphinx-GBS | France | 2014 |
AnDDI-Rares | France | 2014 |
G2M | France | 2015 |
NEOCYST | Germany | 2016 |
Treat-ION | Germany | 2019 |
Muscular Distrophy Clinical Trial Network | Japan | 2012 |
Initiative on Rare and Undiagnosed Diseases | Japan | 2015 |
Asia Pacific Society for Immunodeficiencies | Asia | 2015 |
Asian Primary Immunodeficiency Network | Asia & Africa | 2008 |
Collaborative International Neuromuscular Research Group | International | 2000 |
Undiagnosed Diseases Network International | International | 2014 |