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Table 11 Cluster sensitivity analysis, mean instrument scores

From: Patient-reported outcomes measures of X-linked hypophosphataemia participants: findings from a prospective cohort study in the UK

Instrument

Cluster 1 (n = 24)

“Higher-score”

(mean)

Cluster 2 (n = 9)

“Lower-score”

(mean)

EQ-5D-5L

0.782

0.281

PSQI

7.71

12.89

SF-36-PCS

38.35

18.38

SF-36-MCS

51.79

43.79

SF-MPQ-2

1.29

3.60

painDETECT

6.79

15.89

Negative, n (%)

20 (83.33)

2 (22.22)

Unclear, n (%)

4 (16.67)

4 (44.44)

Positive, n (%)

0 (0.00)

3 (33.33)

  1. EQ-5D-5L, EuroQol 5 dimensions-5 levels; SF-36, Short-form 36; PCS, Physical Component Score; MCS, Mental Component Score; PSQI, Pittsburgh sleep quality index; SF-MPQ-2; Short form McGill pain questionnaire version 2
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172