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Table 10 Cross-sectional summary statistics, by age and PROMs category

From: Patient-reported outcomes measures of X-linked hypophosphataemia participants: findings from a prospective cohort study in the UK

Instrument

Total

 < 40 years

40–60 years

 > 60 years

n

(%)

n

(%)

n

(%)

n

(%)

ESS categories

      

Lower normal daytime sleepiness

12

(52.17%)

5

(71.43%)

5

(50.00%)

2

(33.33%)

Higher normal daytime Sleepiness

9

(39.13%)

1

(14.29%)

5

(50.00%)

3

(50.00%)

Mild excessive daytime sleepiness

1

(4.35%)

1

(14.29%)

0

(0.00%)

0

(0.00%)

Moderate excessive daytime sleepiness

0

(0.00%)

0

(0.00%)

0

(0.00%)

0

(0.00%)

Severe excessive daytime sleepiness

1

(4.35%)

0

(0.00%)

0

(0.00%)

1

(16.67%)

Pain detect categories

   

Negative

28

(65.12%)

15

(83.33%)

10

(66.67%)

3

(30.00%)

Unclear

12

(27.91%)

3

(16.67%)

3

(20.00%)

6

(60.00%)

Positive

3

(6.98%)

0

(0.00%)

2

(13.33%)

1

(10.00%)

HADS categories

   

Anxiety

      

Normal

26

(63.41%)

9

(56.25%)

9

(60.00%)

8

(80.00%)

Mild

10

(24.39%)

4

(25.00%)

4

(26.67%)

2

(20.00%)

Moderate/severe

5

(12.20%)

3

(18.75%)

2

(13.33%)

0

(0.00%)

Depression

      

Normal

35

(85.37%)

14

(87.50%)

13

(86.67%)

8

(80.00%)

Mild

2

(4.88%)

1

(6.25%)

1

(6.67%)

0

(0.00%)

Moderate/severe

4

(9.76%)

1

(6.25%)

1

(6.67%)

2

(20.00%)

  1. ESS, Epworth Sleepiness scale; HADS, Hospital anxiety and depression scale