| Patients | Caregivers |
---|---|---|
n | 72 | 124 |
Gender, n (%) | ||
 Male | 26 (36.1) | 16 (12.9) |
 Female | 46 (63.9) | 108 (87.1) |
Age, median [IQR] | 24.50 [20.00, 33.00] | 37.00 [32.75, 42.00] |
Education, n (%) | ||
 ≤ Middle school | 37 (51.4) | 59 (47.6) |
 Senior high school | 10 (13.9) | 22 (17.7) |
 ≥ Bachelor's degree | 25 (34.7) | 43 (34.7) |
Monthly income, n (%) | ||
 ≤ ¥2000 | 24 (33.3) | 31 (25.0) |
 ¥2000–5000 | 25 (34.7) | 64 (51.6) |
 ≥ ¥5000 | 23 (31.9) | 29 (23.4) |
Employment, n (%) | ||
 Employed | 24 (33.3) | 52 (41.9) |
 Unemployed | 48 (66.7) | 72 (58.1) |
Course of disease, median year [IQR] | 23.00 [18.00, 32.25] | 7.00 [4.00, 12.00] |
Disease types, n (%) | ||
 Osteogenesis imperfecta | 60 (83.3) | 77 (62.1) |
 X- linked hypophosphate rickets | 7 (9.7) | 10 (8.1) |
 Achondroplasia | 1 (1.4) | 19 (15.3) |
 Others | 4 (5.6) | 18(14.5) |
Marital status, n (%) | ||
 Married | 22 (30.6) | 116 (93.5) |
 Not married | 50 (69.4) | 8 (6.5) |
Patient’s care status, n (%) | ||
 Institutionalized care | 0 (0) | 2 (1.61) |
 Family care | 72 (100.00) | 122 (98.39) |