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Table 6 Distribution of the 29-item SScQoL scales

From: Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study

SScQoL scales

SScQoL mean scores (95% CI)

Overall (n = 101)

German sample (n = 79)

French sample (n = 22)

SScQoL 29-item scale summary score (range 0–29)

18.3 (16.7–19.9)

17.4 (15.5–19.3)

21.4 (19.0–23.8)

Subscale 1 Function (range 0–6)

4.1 (3.8–4.4)

4.0 (3.6–4.4)

4.5 (4.0–5.1)

Subscale 2 Emotional (range 0–13)

8.0 (7.3–8.8)

7.5 (6.6–8.4)

9.9 (8.8–10.9)

Subscale 3 Sleep (range 0–2)

1.3 (1.1–1.5)

1.2 (1.0–1.4)

1.7 (1.4–2.0)

Subscale 4 Social (range 0–6)

3.5 (3.1–3.9)

3.5 (3.0–4.0)

3.7 (2.9–4.6)

Subscale 5 Pain (range 0–2)

1.3 (1.1–1.5)

1.2 (1.0–1.4)

1.6 (1.3–1.9)

  1. CI, confidence interval; SScQoL, Systemic Sclerosis Quality of Life
  2. SScQoL answer options are dichotomised for analysis: ‘Always’, ‘Usually’, ‘Sometimes’ = 1; ‘Never’ = 0; Higher scores indicate a greater impact of the disease, i.e., decrease of health-related quality of life (HRQoL)