Table 1 Interview subsample (n = 4) selected according to SScQoL and PACIC mean values

Low quality of life (i.e., high SScQoL score)

High quality of life (i.e., low SScQoL score)

Low chronic care (i.e., low PACIC score)

Low chronic care (i.e., low PACIC score)

Patient 1

Patient 2

SScQoL: 26/29

SScQoL: 5/29

PACIC: 2.2/5

PACIC: 2.5/5

Gender: female

Gender: female

Age: 49 years

Age: 61 years

Disease duration: 37 years

Disease duration: 2 years

Disease subset: dcSSc

Disease subset: lcSSc

Number of comorbidities: 3

Number of comorbidities: 1

Low quality of life (i.e., high SScQoL score)

High quality of life (i.e., low SScQoL score)

High chronic care (i.e., high PACIC score)

High chronic care (i.e., high PACIC score)

Patient 3

Patient 4

SScQoL: 27/29

SScQoL: 2/29

PACIC: 3.8/5

PACIC: 5.0/5

Gender: male

Gender: female

Age: 73 years

Age: 44 years

Disease duration: 13 years

Disease duration: 7 years

Disease subset: dcSSc

Disease subset: unknown

Number of comorbidities: 6

Number of comorbidities: 0