A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis

Table 2 Hours of practical and emotional care per day

*Practical care*^a
Total sample	N	Mean	Median	SD
	36	5.79^a	3.00	6.22

By ambulatory status	N	Mean	Median	SE	Lower bound 95% CI	Upper bound 95% CI	t	p
No assistance walking	12	2.64	2.00	0.54	1.45	3.83	Ref
Assistance with walking	21	6.88	4.00	1.41	3.95	9.82	− 2.21	0.03
Wheelchair/bedridden	3	10.67^a	5.00	6.69	− 18.13	39.46	− 2.56	0.02

*Emotional support*^a
Total sample	N	Mean	Median	SD
	35*	4.08	2.00	6.13

By ambulatory status	N	Mean	Median	SE	Lower bound 95% CI	Upper bound 95% CI	t	p
No assistance walking	12	3.56	1.07	1.49	0.28	6.84	Ref
Assistance with walking	20	4.74	2.00	1.58	1.43	8.05	− 0.50	0.62
Wheelchair/bedridden	3	1.76^a	1.00	1.14	− 3.13	6.66	0.57	0.57

^aThe patient-caregiver (n=1) reported providing 24 hours of practical care and 4 hours of emotional support per day
*Sample size is 1 less than elsewhere because the emotional support item was added after the pilot

ISSN: 1750-1172