M (SD) | n (%) 4/5a | Mdn (IQR) | |
---|---|---|---|
Navigating the health care system | |||
Information about benefits within the framework of the “federal participation act” [Bundesteilhabegesetz] | 4.48 (1.00) | 125 (83.9) | 5 (4–5) |
Information about special rehabilitation measures (e.g., parent–child measures, rehabilitation measures specifically for children with disabilities) | 4.49 (0.91) | 131 (87.9) | 5 (4–5) |
Information about support options without a confirmed diagnosis (e.g., contact points for children with unclear diagnoses) | 3.23 (1.61) 4.77 (0.60) b | 73 (49.0) 12 (92.3) b | 3 (1–5) 5 (5–5) b |
Psychosocial (i.e., mental, emotional, social) strain in the family | |||
Information about how I can cope with emotional strains (e.g., fear, sadness, anger, loneliness) in connection with the disease of the child | 4.11 (1.04) | 114 (76.5) | 4 (4–5) |
Information about possible emotional reactions of siblings due to the disease of the child (e.g., fear, sadness, anger, loneliness) | 3.90 (1.44) 4.45 (0.94) c | 106 (71.1) 77 (86.5) c | 5 (3–5) 5 (4–5) c |
Information about how to support the social inclusion of the child | 4.07 (1.08) | 106 (71.1) | 4 (3–5) |
Strengthen yourself to be strong for others | |||
Information about how I can prevent mental illness | 3.42 (1.31) | 76 (51.0) | 4 (2–5) |
Information about how I can strengthen siblings | 3.67 (1.50) 4.25 (1.00) c | 100 (67.1) 77 (86.5) c | 4 (3–5) 4 (4–5) c |
Information about how I can combine work and caring for the child | 3.57 (1.48) | 87 (58.4) | 4 (2.5–5) |
Further support offerings | |||
Information about support options in everyday life | 4.07 (1.16) | 110 (73.8) | 4 (3–5) |
Information about regular care options for the child | 3.83 (1.33) | 96 (64.4) | 4 (3–5) |
Information about local points of contact | 3.85 (1.32) | 96 (64.4) | 4 (3–5) |