Fig. 2

Overall and domain-specific psychosocial information needs of family caregivers of children with RDs. Note RD: rare disease. N = 149. Psychosocial information needs were measured by 43 five-point Likert scaled items distributed over the four displayed domains (17;11;7;8 items respectively from top to bottom) with answer options ranging from 1 (no information needed) to 5 (in-depth information needed). Scores were combined to transformed sum scores each ranging from 0 to 100, with higher scores indicating higher information need. Error bars indicate 95% confidence intervals. *SD = 26.1