Table 2 Comparison of levels of disability, autonomy, and impact on lives between three groups
Patient characteristics | Group A | Group B | Group C | ||
|---|---|---|---|---|---|
Caregivers (nc = 8) | Caregivers (nc = 9) | Patients (np = 10) | Caregivers (nc = 2) | Patients* (np = 7) | |
Patient's disability (0 = no disability / 10 = severe disability) | |||||
Compared to all patients suffering from the disease | 6.7 | 5.8 | 6.1 | 4 | 2.8 (2) |
Compared to all young people of their age | 8.8 | 8.3 | 7.8 | 7 | 5.5 (5) |
Patient's autonomy (0 = fully autonomous / 10 = no autonomy at all) | |||||
Compared to all patients suffering from the disease | 7.7 | 4.2 | 4.4 | 1 | 1.2 (0) |
Compared to all young people of their age | 8.5 | 7.1 | 6.4 | 3 | 1.4 (2) |
Impact of disease (0 = no impact / 10 = heavy impact) | |||||
Family life | 7.6 | 6.6 | 6 | 5 | 0.6 (0.5) |
Professional life | 4.7 | 5.4 | 7.8 | 5 | 1.0 (1.5) |
Social life | 6.1 | 4.2 | 5.9 | 4 | 2.8 (3.5) |