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Table 5 A summary of the identified implementation FAIRification challenges and proposed solutions

From: Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries

Curated Implementation FAIRification challenges

Specific solution

How can I use the iCRF generator tool?

Experts from the CDE Modelling group for data conversion

How to implement the CDE model in different EDC systems?

 

Advice on data representation languages

 

How to create RDF triples from a SQL database?

 

How to integrate FDP in a registry?

 

Is there a common template for excel import/exports (of the CDEs?)?

 

Is there a template for batch import of metadata elements into ERDRI.MDR?

Experts from the EU RD Platform for findability of registries

How can the EJP RD metadata model be implemented?

Experts from the Metadata Modelling group for metadata conversion

How can the query builder tool be implemented on my system?

Experts from the Query Builder group for data querying

  1. The first column lists the curated challenge, while the second describes the specific solution used to address that