Table 2 Summary of the characteristics of included articles
Article summary | N | % |
|---|---|---|
Number of patients | ||
 ≤ 100 | 136 | 56.9 |
101 to 500 | 73 | 30.5 |
 ≥ 501 | 30 | 12.6 |
Age Range | ||
Pediatric (< 18) | 23 | 9.6 |
Adult (≥ 18) | 187 | 78.2 |
Both | 29 | 12.1 |
Type of QoL report | ||
Self-reported | 226 | 94.6 |
Proxy-reported | 4 | 1.7 |
Both | 9 | 3.8 |
Disease classification (ICD-11) | ||
Neoplasms | 7 | 2.9 |
Diseases of the blood or blood-forming organs | 4 | 1.7 |
Diseases of the circulatory system | 60 | 25.1 |
Diseases of the immune system | 2 | 0.8 |
Endocrine, nutritional or metabolic diseases | 5 | 2.1 |
Sleep–wake disorders | 1 | 0.4 |
Diseases of the nervous system | 18 | 7.4 |
Diseases of the visual system | 58 | 24.3 |
Diseases of the respiratory system | 3 | 1.3 |
Diseases of the digestive system | 58 | 24.3 |
Diseases of the musculoskeletal system or connective tissue | 15 | 6.3 |
Diseases of the urinary system | 1 | 0.4 |
Developmental anomalies | 1 | 0.4 |
Symptoms, signs, or clinical findings, not elsewhere classified | 6 | 2.5 |
Total number of included articles | 239 | |