Table S1 AE-QoL domain structure
Domain | Items |
|---|---|
Functioning | Impairment in any of the following: work; physical activity; spare-time activities; social relations (4 items) |
Fatigue/mood | Difficulties in falling asleep; waking up during the night; feeling tired during the day; difficulties in concentrating; feeling downhearted (5 items) |
Fears/shame | Feeling burdened at having swellings; fear of new, suddenly appearing swellings; fear of increased frequency of swellings; ashamed to visit public places; embarrassed by the appearance of swellings; fear of long-term negative drug effects (6 items) |
Nutrition | General limitations in foods and eating; limitations in the selection of foods and beverages (2 items) |