Table 2 Themes and sub-themes appearing in the in-person (33 participants) and virtual (25 participants) focus groups
Theme | In-person (n = 3) | Virtual (n = 3) | Total (n = 6) |
|---|---|---|---|
Sub-theme | |||
Attitudes and beliefs (n, %) | 106 (43%) | 143 (57%) a | 249 (100%) |
Motivating factors | 84 (41%) | 120 (59%) b | 204 (100%) |
Test type | 23 (46%) | 27 (54%) | 50 (100%) |
Uncertainty | 18 (58%) | 13 (42%) | 31 (100%) |
Cost of testing | 4 (19%) | 17 (81%) b | 21 (100%) |
Information and support (n, %) | 47 (36%) | 84 (64%) b | 131 (100%) |
Information source | 20 (24%) | 62 (76%) b | 82 (100%) |
Pre-test decision support | 18 (45%) | 22 (5%) | 40 (100%) |
Genetic counseling | 14 (47%) | 16 (53%) | 30 (100%) |
Return of results (n, %) | 79 (48%) | 84 (52%) | 163 (100%) |
Uncertainty | 38 (45%) | 47 (55%) | 85 (100%) |
Results interpretation | 36 (54%) | 31 (46%) | 67 (100%) |
Lack of results, waiting | 37 (69%) b | 17 (31%) | 54 (100%) |
Lack of post-test support | 12 (32%) | 25 (68%) c | 37 (100%) |
Family communication (n, %) | 51 (34%) | 97 (66%) b | 148 (100%) |
Barriers | 39 (36%) | 70 (64%) b | 109 (100%) |
Promoters | 24 (37%) | 41 (63%) c | 65 (100%) |
Ethical concerns (n, %) | 46 (70%) b | 20 (30%) | 66 (100%) |
Privacy and data use | 29 (66%) d | 15 (34%) | 44 (100%) |
Sample traceability | 22 (88%) b | 3 (12%) | 25 (100%) |
Informed consent | 17 (85%) b | 3 (15%) | 20 (100%) |