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Table 1 Demographic data of the enrolled patients

From: The Korean undiagnosed diseases program phase I: expansion of the nationwide network and the development of long-term infrastructure

 

Number of patients (total n = 458)

Sex (male:female)

257:201

Mean age of symptom onset (years)

1.4 (range 0–41.9)

Mean age at first medical service (years)

1.9 (range, 0–57.9)

Mean age at KUDP admission (years)

6.2 (range, 0–58.7)

Number of diagnostic tests before the project (n, (%))

 < 5

99 (21.6%)

 5–10

343 (74.9%)

 > 10

16 (3.5%)

Time interval between symptom onset and the first medical evaluation (n, (%))

 < 1 month

264 (57.6%)

 1–6 months

123 (26.9%)

 7–12 months

26 (5.7%)

 1–5 years

36 (7.9%)

 > 5 years

9 (2.0%)

Time interval between the first medical evaluation and KUDP admission (n, (%))

 < 1 month

6 (1.3%)

 1–6 months

53 (11.6%)

 7–12 months

55 (12.0%)

 1–5 years

213 (46.5%)

 5–10 years

78 (17.0%)

 > 10 years

53 (11.6%)