Pain in Rett syndrome: a pilot study and a single case study on the assessment of pain and the construction of a suitable measuring scale

Table 6 PAINAD-RTT

	0	1	2
Breath (Independent of vocalization)	Normal	Breathing at times altered Short periods of hyperventilation	Impaired breathing Hyperventilation Cheyne- Stokes
Vocalization	None	Occasional moans Occasional negative expressions Grinding of teeth	Complaints Cry Scream
Facial expression	Smiling or Expressionless	Sad Anxious Contract	Grimaces Wide eyes Wrinkled forehead
Body language	Relaxed	Tense. Nervous movements. Restlessness	Rigidity. Agitation Knees bent. A finalistic jerky movement. Tremor. Rocking. Biting hands
Consolability	Does not require consolation	Distracted or reassured by voice or touch	Inconsolable, is neither distracted nor reassured
TOTAL

ISSN: 1750-1172