Item | Frequency |
---|---|
Q1: Group of participants (multiple answers possible) | |
Affected persons and relatives | 68 |
Students | 3 |
Medical professionals | 3 |
Interested citizens | 6 |
Others | 6 |
No response | 0 |
Q2: Previous experience of participants (multiple answers possible) | |
Experience in the subject field of rare diseases | 42 |
Scientific work | 18 |
Statistics | 10 |
Design and creation | 5 |
Computer science | 5 |
Citizen science | 4 |
Others | 16 |
No response | 10 |
Q3: Expertise in RD gained by (multiple answers possible) | |
Being affected by an RD | 56 |
Being relative of a affected person | 9 |
Studies | 6 |
Profession | 5 |
Others | 3 |