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Table 3 All-cause healthcare costs (US$) during the 12-month follow-upa (Market Clarity claims data)

From: Clinical characteristics, healthcare use, and annual costs among patients with dystrophic epidermolysis bullosa

 

DDEB (n = 5)

RDEB (n = 26)

DEB (type unknown) (n = 5)

EB unspecified (n = 56)

Total costs

    

 Mean (SD)

31,836 (56,538)

29,995 (48,550)

50,482 (83,340)

26,501 (56,760)

 Median (IQR)

4448 (1309‒21,610)

6882 (3272‒34,203)

20,635 (2515‒29,647)

9057 (933‒20,079)

Medical costs

    

 Mean (SD)

29,436 (55,422)

20,795 (35,142)

48,419 (84,352)

22,179 (53,736)

 Median (IQR)

1667 (1175‒16,460)

5242 (2591‒23,407)

12,330 (2142‒28,534)

8082 (869‒15,410)

Home health costsb

    

 Mean (SD)

625 (1320)

7615 (20,374)

12,895 (28,685)

7219 (38,697)

 Median (IQR)

37 (0‒104)

893 (0‒5132)

0 (0‒268)

0 (0‒13)

Pharmacy costs

    

 Mean (SD)

2400 (2289)

9200 (27,002)

2063 (3512)

4322 (12,976)

 Median (IQR)

2781 (134‒3936)

89 (3‒2857)

524 (373‒1113)

262 (0‒2275)

Bandage costs

    

 Mean (SD)

131 (134)

5341 (14,082)

22,679 (31,792)

530 (939)

 Median (IQR)

71 (37‒284)

472 (37‒2171)

22,679 (198‒45,159)

157 (45‒432)

  1. Rounded to nearest dollar
  2. DDEB dominant dystrophic epidermolysis bullosa, DEB dystrophic epidermolysis bullosa, EB epidermolysis bullosa, IQR interquartile range, RDEB recessive dystrophic epidermolysis bullosa, SD standard deviation
  3. aAmong patients with linked claims data
  4. bEncompasses all services provided in the home setting (e.g., nursing services provided in the home, wound dressings, associated supplies)