Skip to main content

Table 2 Number of all-cause healthcare encounters during the 12-month follow-up (EHR data)

From: Clinical characteristics, healthcare use, and annual costs among patients with dystrophic epidermolysis bullosa

 

DDEB (n = 17)

RDEB (n = 85)

DEB (type unknown) (n = 45)

EB unspecified (n = 265)

Ambulatory visits

    

 Mean (SD)

14.1 (14.0)

19.4 (23.3)

19.4 (23.3)

20.3 (23.9)

 Median (IQR)

6.0 (5.0‒26.0)

12.0 (4.0‒28.0)

10.0 (5.0‒26.0)

13.0 (6.0‒26.0)

Emergency department visits

    

 Mean (SD)

0.2 (0.4)

0.7 (3.2)

0.4 (1.2)

0.5 (1.2)

 Median (IQR)

0.0 (0.0‒0.0)

0.0 (0.0‒0.0)

0.0 (0.0‒0.0)

0.0 (0.0‒0.0)

Inpatient days (patients with inpatient stay)

    

 n

1

8

24

65

 Mean (SD)

2.0 (–)

13.1 (39.9)

8.1 (5.9)

10.0 (12.2)

 Median (IQR)

2.0 (2.0‒2.0)

4.0 (2.0‒8.0)

7.0 (3.0‒11.0)

5.0 (2.0‒10.0)

  1. DDEB dominant dystrophic epidermolysis bullosa, DEB dystrophic epidermolysis bullosa, EB epidermolysis bullosa, EHR electronic health record, IQR interquartile range, RDEB recessive dystrophic epidermolysis bullosa, SD standard deviation