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Table 1 Data from the IPWSO ECHO programme

From: Reducing global health inequalities for a rare disorder: evaluating the international Prader–Willi Syndrome Organisation’s Echo® programme

 

Pilot leadership ECHO

Leadership ECHO

Health ECHO

Latin America ECHO

Caregivers ECHO

Launch date

28 April 2020

1 December 2020

16 February 2021

17 March 2021

12 May 2021

Number of meetings completed

9

10

6

17

3

Format/number of sessions in programme

9 × 90 min sessions

10 × 90 min sessions

10 × 90 min sessions

17 × 3 h sessions

12 × 90 min sessions

Number of didactics

10 by 9 individuals

13 by 12 individuals

6 by 6 individuals

24 by 22 individuals

3

Number of challenges/case studies

14

11

5

30

3

Number of countries participating

25

34

44

13

30

Delegates registering

55

80

134

430

148

Individual attendees

48

74

60

217

 

Mean number of participants per session

21.9

27.6

25.5

92.8

 

Time zones

Western Europe–New Zealand

Western Europe–New Zealand

Western Europe–New Zealand

Latin America

East Coast USA–New Zealand

Audience

PWS member associations

Leaders of PWS associations and parents—worldwide

Multidisciplinary/health and allied professionals—worldwide

Spanish speaking

Multidisciplinary/health and allied professionals

Caregivers and providers

  1. A summary of the iECHO data for the different ECHO programmes is given in Table 1. In total individuals from 34 different countries attended (see Fig. 1)