Total (N = 34) | Late infantile MLD (n = 20) | Juvenile MLD (n = 13) | P -value† | Group A (n = 10) | Group B (n = 11) | Group C (n = 10) | P-value†† | |
---|---|---|---|---|---|---|---|---|
Changes in social life* | ||||||||
Just As Active Socially | 6 (17.6) | 3 (15) | 3 (23.1) | 0.659 | 2 (20) | 2 (18.2) | 2 (20) | 1.000 |
Miss Many Leisure Activities | 19 (55.9) | 10 (50) | 8 (61.6) | 0.722 | 4 (40) | 8 (72.7) | 5 (50) | 0.357 |
Made Significant Lifestyle Changes | 32 (94.1) | 19 (95) | 12 (92.3) | 1.000 | 9 (90) | 11 (100) | 9 (90) | 0.527 |
Satisfaction with personal life | ||||||||
Not at all | 4 (11.8) | 2 (10) | 2 (15.4) | 2 (20) | 2 (18.2) | 0 (0) | ||
A little | 8 (23.5) | 5 (25) | 3 (23.1) | 2 (20) | 2 (18.2) | 2 (20) | ||
Somewhat | 9 (26.5) | 6 (30) | 3 (23.1) | 3 (30) | 1 (9.1) | 4 (40) | ||
Quite | 7 (20.6) | 3 (15) | 4 (30.8) | 3 (30) | 1 (9.1) | 3 (30) | ||
Very | 6 (17.6) | 4 (20) | 1 (7.7) | 0 (0) | 5 (45.5) | 1 (10) | ||
Extremely | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 0 (0) | ||
Dissatisfied with personal life** | 21 (61.8) | 13 (65) | 8 (61.6) | 1.000 | 7 (70) | 5 (45.5) | 6 (60) | 0.596 |
Ability to keep up with responsibilities and commitments | ||||||||
Always | 8 (23.5) | 3 (15) | 5 (38.5) | 2 (20) | 2 (18.2) | 2 (20) | ||
Often | 12 (35.3) | 7 (35) | 5 (38.5) | 3 (30) | 4 (36.4) | 5 (50) | ||
Sometimes | 10 (29.4) | 7 (35) | 2 (15.4) | 4 (40) | 3 (27.3) | 2 (20) | ||
Rarely | 4 (11.8) | 3 (15) | 1 (7.7) | 1 (10) | 2 (18.2) | 1 (10) | ||
Never | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 0 (0) | ||
Usually# | 20 (58.8) | 10 (50) | 10 (76.9) | 0.159 | 5 (50) | 6 (54.6) | 7 (70) | 0.732 |