Table 4 Enzyme replacement therapy-related characteristics of Fabry disease patients
Characteristics | Patients (n = 58) |
|---|---|
Before the pandemic | |
Where did you receive ERT?, % | |
Health clinic | 5.2 |
Private hospital | 8.6 |
Public hospital | 56.9 |
University hospital | 28.3 |
During the pandemic | |
Have you received ERT regularly during the pandemic? (no), % | 41.4 |
If you haven't, why?, % | |
Afraid to go to the hospital due to fear of contagion | 62.5 |
Inability to find a hospital for the infusion | 25 |
Lack or inability to obtain medication | 12.5 |
How many doses have you skipped? | 2.3 ± 1.7 |
Median (min–max) | 1.5 (1–6) |
Where did you receive ERT? | |
Health clinic | 1.7 |
Private hospital | 13.8 |
Public hospital | 31 |
University hospital | 1.7 |
Home | 51.7 |