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Table 1 Patient-reported life impacts from access burdens

From: Health insurance literacy and health services access barriers in Niemann–Pick disease: the patient and caregiver voice

Life impact

Number of mentions

Mental health

39

Physical symptoms

25

Impact from delays and denials

16

Future impact

13

Caregiver: support system

10

Independence

8

Social impacts

8

Access challenges regarding quality of care

8

Financial

5

Traveling difficulties

5

Misses school/events

4

Caregiver mental health

3