Table 5 PedsQL score of subjects with and without individual symptoms listed on SProND
Physical health summary score | Psychosocial health summary score | Total PedsQL score | ||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Emotional functioning | Social functioning | School functioning | Total | |||||||||||||||
mean score | mean score | mean score | mean score | mean score | mean score | |||||||||||||
Yes | No | p-value | Yes | No | p-value | Yes | No | p-value | Yes | No | p-value | Yes | No | p-value | Yes | No | p-value | |
1. Seizure (n = 13) | 31.3 | 42.0 | 0.256 | 55.4 | 68.0 | 0.092 | 35.4 | 44.1 | 0.261 | 43.9 | 53.9 | 0.133 | 45.0 | 55.9 | 0.078 | 39.8 | 49.9 | 0.116 |
Neurobehavioural | ||||||||||||||||||
2. Hyperactivity behaviour (n = 13) | 45.4 | 34.0 | 0.225 | 58.5 | 66.3 | 0.302 | 37.3 | 43.0 | 0.464 | 46.7 | 52.1 | 0.353 | 47.6 | 54.3 | 0.233 | 46.5 | 46.2 | 0.961 |
3. Aggressive behaviour (n = 11) | 50.6 | 32.6 | 0.064 | 59.1 | 65.4 | 0.428 | 37.3 | 42.6 | 0.514 | 47.2 | 51.3 | 0.573 | 47.5 | 53.4 | 0.378 | 48.5 | 45.3 | 0.634 |
Movements and mobility related | ||||||||||||||||||
4. Involuntary movements (n = 26) | 32.5 | 52.8 | 0.040 | 57.3 | 79.5 | 0.004 | 36.9 | 51.5 | 0.077 | 45.1 | 63.9 | 0.008 | 46.8* | 65.3 | 0.005 | 40.9 | 60.2 | 0.004 |
5. Joint stiffness (n = 23) | 24.3 | 62.5 | < 0.001 | 57.8 | 73.5 | 0.035 | 34.1 | 53.1 | 0.012 | 42.6 | 62.1 | 0.002 | 44.9* | 62.6 | 0.003 | 37.3 | 62.3 | < 0.001 |
6. Muscle spasm (n = 19) | 24.0 | 53.9 | < 0.001 | 56.3 | 71.5 | 0.034 | 36.8 | 45.6 | 0.243 | 45.8 | 54.8 | 0.170 | 46.8 | 57.2 | 0.083 | 37.9 | 55.7 | 0.003 |
Breathing and swallowing | ||||||||||||||||||
7. Swallowing difficulty (n = 9) | 11.8** | 46.9 | < 0.001 | 55.0 | 66.3 | 0.178 | 31.7 | 44.1 | 0.148 | 40.0 | 53.1 | 0.084 | 43.0 | 54.4 | 0.113 | 30.8 | 51.4 | < 0.001 |
8. Need for respiratory support (n = 6) | 17.7 | 42.2 | 0.040 | 53.3 | 65.5 | 0.213 | 34.2 | 42.3 | 0.599 | 37.0 | 52.3 | 0.094 | 42.7 | 53.3 | 0.219 | 32.8 | 49.0 | 0.049 |
9. Drooling (n = 15) | 15.0** | 52.8 | < 0.001 | 53.2 | 70.0 | 0.012 | 29.6 | 48.2 | 0.012 | 40.4 | 55.3 | 0.025 | 40.7* | 57.7 | 0.005 | 31.3 | 55.8 | < 0.001 |
Daily activities | ||||||||||||||||||
10. Pain (n = 9) | 22.6 | 43.3 | 0.044 | 55.6 | 66.1 | 0.209 | 33.3 | 43.5 | 0.238 | 38.8 | 53.5 | 0.051 | 43.3 | 54.3 | 0.126 | 35.3 | 50.0 | 0.038 |
11. Constipation (大便次數) (n = 18) | 25.9 | 50.3 | 0.005 | 56.9 | 70.0 | 0.070 | 37.5 | 44.4 | 0.355 | 49.1 | 51.0 | 0.778 | 48.3 | 55.1 | 0.272 | 39.4 | 53.1 | 0.024 |
12. Sleep problem eg. insomnia, day/ night disturbance, night terror etc.(n = 15) | 25.0 | 47.5 | 0.011 | 49.7 | 73.3 | 0.001 | 31.0 | 48.1 | 0.020 | 39.3 | 57.6 | 0.004 | 40.2* | 59.7 | 0.001 | 34.6 | 54.7 | 0.001 |
13. Anorexia/ nausea/ vomiting (n = 11) | 24.4 | 44.1 | 0.041 | 53.2 | 68.0 | 0.057 | 32.7 | 44.6 | 0.141 | 40.0 | 54.2 | 0.043 | 42.6* | 55.5 | 0.050 | 35.2 | 51.2 | 0.015 |
14. Urinary problem (n = 20) | 26.3 | 51.3 | 0.004 | 56.6 | 71.2 | 0.041 | 35.8 | 46.8 | 0.140 | 50.1 | 50.0 | 0.988 | 47.4 | 56.0 | 0.153 | 39.3 | 54.1 | 0.015 |