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Table 4 PAG perspectives of the structure and management of achondroplasia care

From: Optimising care and follow-up of adults with achondroplasia

Question No. of responses*
How many centres of excellence/referral centres for skeletal dysplasia/rare bone conditions (including achondroplasia) are there in your country?
 0 0
 1 2
 2 5
 3 1
 ≥ 4 7
 I don’t know 3
Are paediatric multidisciplinary teams for achondroplasia available in centres of excellence/referral centres?
 Yes, in all 9
 Yes, in some 6
 No 0
 I don’t know 1
Are adult multidisciplinary teams for achondroplasia available in centres of excellence/referral centres?
 Yes, in all 2
 Yes, in some 6
 No 4
 I don’t know 3
Do healthcare teams or processes to facilitate the transition of children with achondroplasia from paediatric to adult services exist in your country?
 Yes, in all 0
 Yes, but only in centres of excellence 9
 Not that I know of 6
  1. *Not all respondents answered all questions