Table 4 PAG perspectives of the structure and management of achondroplasia care

How many centres of excellence/referral centres for skeletal dysplasia/rare bone conditions (including achondroplasia) are there in your country?

 0

0

 1

2

 2

5

 3

1

 ≥ 4

7

 I don’t know

3

Are paediatric multidisciplinary teams for achondroplasia available in centres of excellence/referral centres?

 Yes, in all

9

 Yes, in some

6

 No

0

 I don’t know

1

Are adult multidisciplinary teams for achondroplasia available in centres of excellence/referral centres?

 Yes, in all

2

 Yes, in some

6

 No

4

 I don’t know

3

Do healthcare teams or processes to facilitate the transition of children with achondroplasia from paediatric to adult services exist in your country?

 Yes, in all

0

 Yes, but only in centres of excellence

9

 Not that I know of

6