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Table 3 Key barriers to effective transition from paediatric to adult services and management in adulthood

From: Optimising care and follow-up of adults with achondroplasia

Question
n, %
HCP
(n = 15*)
PAG
(n = 10*)
There is no MDT service available for adults 11 (73) 6 (60)
Adult MDT services are not as experienced in achondroplasia management as the paediatric MDT 10 (67) 6 (60)
Lack of interest/resistance from the individual with achondroplasia to access care 8 (53) 8 (80)
Individuals are lost to follow up at the point of transition to adult services 7 (47) 6 (60)
The transition processes are unclear and challenging 6 (40) 4 (40)
Fewer needs for care 4 (27) 3 (30)
Poor communication between healthcare services 4 (27) 3 (30)
Travel distance to the centre 2 (13) 3 (30)
Lack of trust/relationship with new physician or team 1 (7) 1 (10)
Individuals are lost to follow up in paediatric services 1 (7) 2 (20)
Lack of preparation for attending adult hospital without parents 1 (7) 2 (20)
Poor communication between the individual with achondroplasia (or family) and the MDT 0 0
Other   2 (20)
  1. *Respondents could select more than one answer