From: Optimising care and follow-up of adults with achondroplasia
UK | “There is no structured transition process” |
France | “At 16–17 years, there is a clinic with the adult rheumatologist in our paediatric centre. At 18 years there is a multidisciplinary clinic in the adult hospital with the paediatric team (geneticist and orthopaedist) and the adult team (rheumatologist and orthopaedic surgeon)” |
Norway | “[there is] no transition as we [The National Resource Centre] offer lifelong care” |
Spain | “The core group in the skeletal dysplasia clinic (Medical Genetics, RHB and traumatologist) follow paediatric and adults” |