Table 1 HCP perspectives of the structure and management of achondroplasia care in adulthood
From: Optimising care and follow-up of adults with achondroplasia
Question | No. of responses* |
|---|---|
Is there a structured transition process from paediatric to adult services? | |
Yes | 6 |
No | 9 |
Do patients leaving/attending your centre transition to an MDT for management of achondroplasia in adulthood? | |
Yes | 6 |
No | 8 |
I don’t know | 1 |
Is there a lead clinician in the management of adults with achondroplasia? | |
Yes | 11 |
No | 3 |
I don’t know | 1 |
If yes, who is the lead clinician? | |
Endocrinologist | 4 |
Rheumatologist | 3 |
Clinical geneticist | 4 |
Orthopaedic surgeon | 0 |
Genetic counsellor | 0 |
Primary care physician | 1 |