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Table 4 Percentage of syndromic craniosynostosis

From: ERN CRANIO patient coverage of craniosynostosis in Europe

Country

Generated prevalence

Live births 2017

Percentage syndromic (%)

Range percentage syndromic

The Netherlands

2.6

170,000

22.8

In range

UK

1.5

755,000

22.7

In range

Portugal

0.6

86,000

16.7

In range

Sweden

1.2

115,000

12.6

In range

Germany

0.2

785,000

9.7

Lower

Italy

0.4

458,000

6.3

Lower

France

0.3

770,000

6.1

Lower

Finland

0.2

50,000

4.0

Lower

  1. Percentage of new (total) craniosynostosis patients that were reported to be syndromic per relevant country