ERN CRANIO patient coverage of craniosynostosis in Europe

Table 1 Expected prevalence of craniosynostosis

Country	Time span	Average prevalence Per 10,000 live births		First author and year
Norway	2003–2017	Total craniosynostosis	4.4	Tonne et al. [10]
Norway	2003–2017	Syndromic craniosynostosis	1.6 (36.3%)
The Netherlands	2008–2013	Total craniosynostosis	7.2	Cornelissen et al. [9]
The Netherlands	2008–2013	Syndromic craniosynostosis	0.9 (12.3%)

Expected prevalence ranges for total and syndromic craniosynostosis, per 10,000 live births within the mentioned timeframes. These prevalence figures are based on previous country-level studies. Syndromic craniosynostosis cases include multisutural craniosynostosis. The percentage of craniosynostosis cases that were reported to be syndromic (including multisutural craniosynostosis) are also displayed

ISSN: 1750-1172