Is it necessary to undergo genetic screening? | Value | P | |||
---|---|---|---|---|---|
Total (n = 1141, 100%) | Yes (n = 989, 86.68%) | No/I don’t know (n = 152, 13.32%) | |||
Gender | |||||
Male | 271 (23.75%) | 235 (23.76%) | 36 (23.68%) | 0.00 | P > 0.05 |
Female | 870 (76.25%) | 754 (76.24%) | 116 (76.32%) | ||
Age (years old) | |||||
≤ 24 | 41 (3.59%) | 37 (3.74%) | 4 (2.63%) | ||
25–29 | 443 (38.83%) | 380 (38.42%) | 63 (41.45%) | 5.995 | P > 0.05 |
30–34 | 490 (42.94%) | 418 (42.27%) | 72 (47.37%) | ||
≥ 35 | 167 (14.64%) | 154 (15.57%) | 13 (8.55%) | ||
Have you had family history of genetic disease? | |||||
Yes | 3 (0.26%) | 3 (0.30%) | 0 (0.00%) | 0.462 | P > 0.05 |
No | 1138 (99.74%) | 986 (99.70%) | 152 (100%) | ||
Nation | |||||
Han nationality | 1117 (97.90%) | 969 (97.98%) | 148 (97.37%) | 0.238 | P > 0.05 |
Others | 24 (2.10%) | 20 (2.02%) | 4 (2.63%) | ||
Had any abnormalities in your/your spouse's fetus during pregnancy? | |||||
Yes | 34 (2.98%) | 32 (3.24%) | 2 (1.32%) | 1.680 | P > 0.05 |
No | 1107 (97.02%) | 957 (96.76%) | 150 (98.68%) | ||
If your child is diagnosed with an inherited genetic disease but not treated, will you worry about the aggravation of your child's condition? | |||||
Yes | 1120 (98.16%) | 977 (98.79%) | 143 (94.08%) | 16.162 | P < 0.05 |
No | 21 (1.84%) | 12 (1.21%) | 9 (5.92%) | ||
Educational background | |||||
Below high school | 53 (4.64%) | 38 (3.84%) | 15 (9.87%) | 23.727 | P < 0.05 |
High school and technical secondary school | 103 (9.03%) | 83 (8.39%) | 20 (13.16%) | ||
Junior college/Vocational College | 242 (21.21%) | 200 (20.22%) | 42 (27.63%) | ||
Undergraduate or above | 743 (65.12%) | 668 (67.55%) | 75 (49.34%) | ||
Family income | |||||
< 100 thousand RMB | 187 (16.39%) | 137 (13.85%) | 50 (32.89%) | ||
100–250 thousand RMB | 577 (50.57%) | 508 (51.37%) | 69 (45.39%) | 40.277 | P < 0.05 |
260–400 thousand RMB | 255 (22.35%) | 227 (22.95%) | 28 (18.42%) | ||
> 400 thousand RMB | 122 (10.69%) | 117 (11.83%) | 5 (3.30%) | ||
If your child is diagnosed with an inherited genetic disease and requires long-term (lifelong) treatment, how do you think it will affect your family life status? | |||||
Decrease the quality of life, increase daily burden and anxiety, and life becomes negative | 267 (23.40%) | 227 (22.95%) | 40 (26.32%) | 0.831 | P > 0.05 |
Grateful for early detection and treatment for the disease which improves the child’s quality of life | 874 (76.60%) | 762 (77.05%) | 112 (73.68%) |