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Table 2 Views and perceptions of families’ involvement in the drug approval process among CDG professionals and families

From: Stakeholders’ views on drug development: the congenital disorders of glycosylation community perspective

  Professionals
(n = 46)
Families
(n = 82)
  Do you think patients have a role to play in the drug approval process?
Yes 67.4% 79.3%
No 15.2% 11.0%
I don’t know 17.4% 9.8%