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Table 2 Views and perceptions of families’ involvement in the drug approval process among CDG professionals and families

From: Stakeholders’ views on drug development: the congenital disorders of glycosylation community perspective

 

Professionals

(n = 46)

Families

(n = 82)

 

Do you think patients have a role to play in the drug approval process?

Yes

67.4%

79.3%

No

15.2%

11.0%

I don’t know

17.4%

9.8%