Confirmatory factor analysis | Exploratory structural equation modelling | ||||||||
---|---|---|---|---|---|---|---|---|---|
Items a | λ | δ | PL (λ) | SR (λ) | CAB (λ) | RMP (λ) | ES (λ) | ED (λ) | δ |
Factor 1: physical limitations (PL) | |||||||||
1. I feel like I'm running in slow motiona | 0.79 | 0.38 | 0.77 | − 0.02 | 0.16 | − 0.17 | − 0.07 | 0.12 | 0.33 |
6. Hereditary Hemorrhagic Telangiectasia disease limits my movements (walking, mobility…) | 0.78 | 0.39 | 0.70 | 0.09 | 0.22 | 0.12 | − 0.25 | 0.06 | 0.37 |
12. Because of the disease, I am limited in my intense physical activities (running, heavy lifting, sports, etc.) | 0.78 | 0.39 | 0.71 | 0.09 | 0.26 | 0.05 | − 0.22 | − 0.04 | 0.37 |
17. I am often physically tired | 0.76 | 0.43 | 0.80 | − 0.06 | 0.09 | − .12 | 0.02 | 0.22 | 0.29 |
Factor 2: social relationships (SR) | |||||||||
2. Being able to talk about the disease with my family helps me cope better | 0.58 | 0.67 | − 0.09 | 0.58 | 0.06 | 0.11 | − 0.08 | 0.07 | 0.64 |
7. I can cope better with the disease thanks to the support of my friends | 0.55 | 0.70 | 0.05 | 0.49 | 0.07 | 0.27 | − 0.02 | − 0.02 | 0.68 |
13. The fact that my family understands what I need improves my daily life | 0.83 | 0.31 | 0.04 | 0.75 | 0.07 | 0.25 | 0.10 | 0.09 | 0.34 |
18. The fact that my family understands what I am going through makes my life better | 0.81 | 0.34 | 0.06 | 0.83 | 0.07 | 0.14 | 0.07 | 0.03 | 0.28 |
Factor 3: concern about bleeding (CAB) | |||||||||
3. I am bothered by the sudden and unpredictable nature of the bleeding | 0.63 | 0.60 | 0.20 | 0.03 | 0.54 | 0.01 | − 0.13 | 0.22 | 0.60 |
8. The frequency, duration and/or intensity of bleeding is very disturbing to me | 0.60 | 0.64 | 0.37 | − 0.03 | 0.50 | 0.01 | − 0.21 | 0.12 | 0.56 |
14. I am often apprehensive about bleeding in public | 0.92 | 0.16 | 0.17 | 0.14 | 0.85 | − 0.06 | − 0.18 | 0.13 | 0.19 |
19. I am very embarrassed to bleed in public | 0.94 | 0.12 | 0.10 | 0.06 | 0.94 | − 0.04 | − 0.12 | 0.19 | 0.05 |
Factor 4: Relationship with the medical profession (RMP) | |||||||||
4. Thanks to the medical advice offered to me, my quality of life is preserved | 0.74 | 0.46 | − 0.14 | 0.30 | − 0.05 | 0.63 | 0.17 | 0.07 | 0.47 |
9. Thanks to medical recommendations, I can limit the impact of symptoms on my daily life | 0.74 | 0.45 | − 0.01 | 0.17 | − 0.06 | 0.81 | 0.08 | − 0.01 | 0.31 |
20. The quality of the relationships I have with the caregivers allows me to be serene | 0.58 | 0.67 | 0.02 | 0.17 | − 0.04 | 0.45 | 0.28 | − 0.02 | v.68 |
24. Thanks to the information given by the caregivers I can learn about the disease and get involved in the care | 0.61 | 0.63 | − 0.05 | 0.18 | 0.03 | 0.54 | 0.13 | 0.06 | 0.66 |
Factor 5: experience of symptoms (ES) | |||||||||
10. The symptoms of the disease do not bother me too much because I have learned to manage them | 0.60 | 0.64 | − 0.18 | 0.03 | − 0.18 | 0.24 | 0.45 | − 0.18 | 0.64 |
15. Hereditary Hemorrhagic Telangiectasia disease seems so familiar to me that I don't feel like I'm sick | 0.79 | 0.37 | − 0.22 | 0.04 | − 0.18 | 0.14 | 0.69 | − 0.20 | 0.38 |
21. I don't feel embarrassed by the disease because I feel like I have always lived with it | 0.82 | 0.33 | − 0.10 | 0.05 | − 0.21 | 0.16 | 0.75 | − 0.19 | 0.32 |
23. Even though I often have nosebleeds, I don't pay much attention to it because it has become a habit | 0.64 | 0.59 | − 0.10 | 0.00 | − 0.13 | 0.07 | 0.64 | − 0.07 | 0.56 |
Factor 6: Evolution of the disease (ED) | |||||||||
5. I fear that the disease will worsen with age | 0.69 | 0.52 | 0.18 | − 0.04 | 0.24 | 0.00 | − 0.20 | 0.59 | 0.52 |
11. I am concerned about the health of other family members who have Hereditary Hemorrhagic Telangiectasia disease | 0.48 | 0.77 | − 0.01 | 0.18 | 0.15 | 0.03 | − 0.19 | 0.43 | 0.73 |
16. I worry about my health when I see others around me who have Hereditary Hemorrhagic Telangiectasia disease | 0.57 | 0.68 | 0.06 | 0.18 | 0.18 | 0.05 | − 0.13 | 0.53 | 0.63 |
22. I am concerned about the evolution of the disease in the future | 0.78 | 0.39 | 0.22 | − 0.04 | 0.24 | 0.02 | − 0.19 | 0.68 | 0.40 |