Skip to main content

Table 4 Average annual costs per patient, paediatric patients (n = 41, 2020 €)

From: Understanding the socioeconomic costs of dystrophic epidermolysis bullosa in Europe: a costing and health-related quality of life study

 

Average

France

Germany

Italy

Spain

United Kingdom

Mean

SD

Mean

SD

Mean

SD

Mean

SD

Mean

SD

Mean

SD

  Drugs

864

1399

0

0

114

75

3094

1208

294

238

105

65

  Tests

139

217

111

114

34

13

36

45

184

245

470

353

  Visits

2777

4575

2166

2400

5515

3887

1488

1380

4249

6813

3066

2741

  Hospitals

2835

7124

3287

7020

10,044

14,204

1540

2294

4076

9736

243

485

  Material

864

1316

2391

2005

1200

1509

31

36

298

383

2620

596

  HC transport

105

522

25

66

529

748

0

0

210

825

0

0

Direct medical

7584

9539

7981

10,462

17,435

20,436

6189

3135

9312

12,266

6503

3170

  Social health service

1737

6919

5896

13,377

15,398

21,777

27

88

52

216

0

0

  Professional carer

71

481

466

1234

0

0

0

0

0

0

0

0

  Non-HC transport

153

347

309

696

790

809

62

84

104

166

84

153

  Main informnal carer

45,768

36,421

8498

19,502

80,474

3347

53,084

39,919

60,888

27,794

56,864

38,758

  Other informal carer

14,246

21,295

4455

11,788

17,197

19,439

23,720

27,053

16,552

23,271

10,463

12,930

Direct non-medical

61,975

50,927

19,624

45,059

113,859

38,676

76,893

55,747

77,597

41,367

67,411

45,396

  Productivity loss

0

0

0

0

0

0

0

0

0

0

0

0

  Early retirement

0

0

0

0

0

0

0

0

0

0

0

0

Indirect

0

0

0

0

0

0

0

0

0

0

0

0

TOTAL

69,559

55,103

27,605

55,364

131,293

59,112

83,082

56,212

86,909

44,825

73,914

46,593