Understanding the socioeconomic costs of dystrophic epidermolysis bullosa in Europe: a costing and health-related quality of life study

Table 3 Average annual costs per patient, adult patients (n = 50, 2020 €)

	Average		France		Germany		Italy		Spain		United Kingdom
	Mean	SD	Mean	SD	Mean	SD	Mean	SD	Mean	SD	Mean	SD
Drugs	1151	1871	83	138	5	7	3550	1870	427	892	53	78
Tests	254	496	136	112	229	323	101	139	379	550	437	828
Visits	2157	3420	509	551	4965	5884	2874	2374	829	1207	4101	5906
Hospitals	3083	7634	822	2174	2009	2841	6063	11,218	2919	7478	1720	4780
Material	1250	1749	1784	1785	34	3	1043	1611	566	2037	2459	1125
HC transport	34	154	0	0	476	673	0	0	23	87	48	158
Direct medical	7929	10,427	3335	3376	7717	9731	13,630	12,750	5143	10,794	8818	8208
Social health service	1335	3876	215	569	0	0	3265	6418	1352	2797	0	0
Professional carer	936	4955	0	0	0	0	985	2598	0	0	3167	10,505
Non-HC transport	96	166	100	171	142	139	111	223	85	122	47	75
Main informal carer	11,450	21,188	2624	5107	0	0	11,031	14,707	20,074	28,670	8293	24,461
Other informal carer	5200	14,314	1359	3129	0	0	6178	13,354	10,686	22,458	0	0
Direct non-medical	19,017	32,209	4298	8716	142	139	21,569	23,361	32,196	48,113	11,508	25,541
Productivity loss	471	2359	2328	6160	0	0	149	578	363	1404	90	298
Early retirement	5794	12,206	0	0	19,658	27,801	1627	3369	6358	11,027	13,451	18,663
Indirect	6265	12,206	2328	6160	19,658	27,801	1777	3341	6721	10,891	13,541	18,594
TOTAL	33,211	42,645	9961	10,176	27,517	37,671	36,976	34,671	44,060	57,418	33,867	46,441

ISSN: 1750-1172