| France | Germany | Italy | Spain | UK | Total/average |
---|---|---|---|---|---|---|
Patients | Â | Â | Â | Â | Â | Â |
No. | 14 | 4 | 26 | 32 | 15 | 91 |
Sex, females % | 57.1 | 100.0 | 57.7 | 59.4 | 66.7 | 61.5 |
All patients, average age | Â | Â | Â | Â | Â | Â |
  Years | 24.6 | 28.8 | 18.7 | 21.1 | 31.5 | 23.0 |
  SD | 23.3 | 24.0 | 10.6 | 18.0 | 20.5 | 18.1 |
Adults, No. | 7 | 2 | 15 | 15 | 11 | 50 |
Adults, % | 50.0 | 50.0 | 57.7 | 46.9 | 73.3 | 54.9 |
Adults, average age | Â | Â | Â | Â | Â | Â |
  Years | 42.1 | 49.0 | 26.0 | 38.7 | 41.3 | 36.3 |
Adolescents, No. | 7 | 2 | 11 | 17 | 4 | 41 |
Adolescents, % | 50.0 | 50.0 | 42.3 | 53.1 | 26.7 | 45.1 |
Adolescents, average age | Â | Â | Â | Â | Â | Â |
  Years | 7.1 | 8.5 | 8.8 | 5.6 | 4.8 | 6.8 |
Disease subtype, % | Â | Â | Â | Â | Â | Â |
  Dystrophic generalised | 57.1 | 100.0 | 88.5 | 81.3 | 60.0 | 76.9 |
  Dystrophic localised | 42.9 | 0.0 | 11.5 | 18.8 | 40.0 | 23.1 |
Caregivers (main) | Â | Â | Â | Â | Â | Â |
No. | 5 | 2 | 19 | 23 | 6 | 55 |
Sex, males, % | 0.0 | 0.0 | 21.1 | 17.4 | 16.7 | 16.4 |
Sex, females % | 100.0 | 100.0 | 78.9 | 82.6 | 83.3 | 83.6 |
Average age | Â | Â | Â | Â | Â | Â |
  Years | 37.5 | 44.0 | 38.2 | 47.2 | 46.4 | 43.3 |
  SD | 8.1 | 12.7 | 19.3 | 15.3 | 11.3 | 16.1 |
Relationship to patient, % | Â | Â | Â | Â | Â | Â |
  Parent | 40.0 | 100.0 | 26.3 | 87.0 | 50.0 | 58.2 |
  Other relative | 20.0 | 0.0 | 57.9 | 8.7 | 0.0 | 25.5 |
  Partner or other | 20.0 | 0.0 | 5.3 | 4.3 | 33.3 | 9.1 |
Employment status, % | Â | Â | Â | Â | Â | Â |
  Employed | 40.0 | 100.0 | 31.6 | 43.5 | 33.3 | 40.0 |
  Retired | 0.0 | 0.0 | 15.8 | 21.7 | 0.0 | 14.5 |
  Houseworker | 20.0 | 0.0 | 26.3 | 30.4 | 50.0 | 29.1 |
  Other | 20.0 | 0.0 | 15.8 | 4.3 | 0.0 | 9.1 |
Average dedication | Â | Â | Â | Â | Â | Â |
  Hours per week | 27.8 | 108.8 | 59.6 | 81.8 | 73.0 | 69.0 |
  SD | 37.7 | 4.5 | 36.2 | 32.5 | 52.3 | 39.4 |