Table 5 Results of the second round of Delphi regarding features and data elements of IRI.HUS.Reg

1

Features

Negative Coombs test

100

2

Only patients under-five years*

11

3

Case finding through HUS diagnostic ICD code in medical records

100

4

Specialized laboratories (nephrology or genetics)

100

5

Determining the ratio of variables values to each other (e.g. the ratio of patients number under five to over five years)*

6

1

Data elements

Exposing to radiotherapy or chemotherapy

100

2

Contact with livestock

78

3

Diet*

6

4

Contact with agricultural pesticides*

0

5

Scorpion bites (like Gadim scorpions)

100

6

Parental consanguineous marriage*

11

7

Date of the first treatment*

17

8

Systemic lupus erythematosus*

6

9

Meningococcal infections

100

10

Against Medical Advice (AMA) *

0