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Table 4 Coverage in existing HAE-specific instruments for symptoms reported in literature and by clinicians

From: The symptom experience of hereditary angioedema (HAE) patients beyond HAE attacks: literature review and clinician interviews

  1. AAS Angioedema activity score, AECT angioedema control test, AE-QoL angioedema quality of life score, HAE-PRO hereditary angioedema PRO, HAE-AS hereditary angioedema activity score, HAE-QoL hereditary angioedema association quality of life, HAEA-QoL hereditary angioedema association
  2. Blue cells = Symptom identified in at least one instrument; Green cells = Symptom not included in any instrument
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172