Skip to main content

Table 5 Emergency physicians’ needs for RD information

From: Poor education and urgent information need for emergency physicians about rare diseases in China

Items

N

%

Would you like to know more about rare diseases?

 Yes

497

92.21%

 No

4

0.74%

 I'm not sure

38

7.05%

The reasons delaying the diagnosis of rare disease

 Lack of practice guidelines or consensus

450

83.49%

 Do not know how to find relevant professional websites

271

50.28%

 Do not know a hospital or specialist that I can refer to

252

46.75%

 Lack of material or official account to disseminate to patients or their family

225

41.74%

 Do not know a hospital or specialist for genetic counselling

277

51.39%

Which aspect of rare diseases do you prefer to learn more about?

 Practice guidelines or consensus

466

86.46%

 Relevant professional websites

370

68.65%

 A hospital or specialist that I can refer to

308

57.14%

 Material or official account to disseminate to patients or their family

267

49.54%

 A hospital or specialist for genetic counselling

271

50.28%

Which specialty needs more in-depth training on rare diseases?

 Paediatrician

156

28.94%

 General practitioner

212

39.33%

 Neurologist

110

20.41%

 Geneticist

186

34.51%

 Physician

139

25.79%

 Emergency physician

254

47.12%

 Every physician regardless of specialization

276

51.21%

 Other

9

1.67%

 None

4

0.74%

Is it necessary to add a course on rare disease to your medical school education?

 Yes

475

88.13%

 No

32

5.94%

 Depends on the course content

32

5.94%