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Table 1 Characteristic of 42 study participants

From: A mixed method study on the impact of living with spinal muscular atrophy in Malaysia from patients’ and caregivers’ perspectives

Characteristics

PWSMA

N = 13 (31%)

Caregivers of PWSMA

N = 29 (69%)

Gender

  

Male

5 (38)

11 (38)

Female

8 (62)

18 (62)

Ethnicity

  

Malay

7 (54)

22 (76)

Chinese

5 (38)

5(17)

Indian

1 (8)

1 (3)

Others

0

1 (3)

Age (years)

  

10–19

2 (14)

20–29

9 (69)

2 (7)

30–39

1 (8)

10 (34)

40–49

1 (8)

9 (31)

50 and above

0

8 (28)

SMA type

  

Type 1

0 (0)

8 (28)

Type 2

9 (69)

11 (38)

Type 3

4 (31)

10 (34)

Highest formal education

  

No formal education

1 (8)

1 (3)

Primary

4 (31)

0 (0)

Secondary

2 (15)

12 (42)

Tertiary

6 (46)

15 (52)

Did not respond

1 (3)