Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases

Bogart, Kathleen; Hemmesch, Amanda; Barnes, Erica; Blissenbach, Thomas; Beisang, Arthur; Engel, Patti

doi:10.1186/s13023-022-02343-4

Table 5 Regression predicting anxiety and depression in children with RDs

From: Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases

Step		Anxiety				Depression
Step		b	Std. error	Beta	Sig.	b	Std. error	Beta	Sig.
1	Gender (dummy coded 1 = female)	− 0.96	3.25	− 0.04	0.77	− 3.38	2.84	− 0.15	0.24
	Race/ethnicity (1 = white, 2 = person of color)	0.28	4.50	0.01	0.95	− 0.97	3.78	− 0.03	0.80
	Age	0.69	0.43	0.21	0.11	0.49	0.38	0.17	0.19
2	Gender (dummy coded 1 = female)	− 1.23	2.91	− 0.05	0.67	− 1.64	2.36	− 0.07	0.49
	Race/ethnicity (1 = white, 2 = person of color)	0.94	3.75	0.03	0.80	− 0.73	2.91	− 0.02	0.80
	Age	0.22	0.44	0.06	0.63	0.23	0.35	0.08	0.52
	RD number	− 7.24	1.93	− 0.42	0.00	− 4.88	1.54	− 0.32	0.00
	Time since diagnosis	0.57	0.34	0.20	0.10	0.29	0.28	0.11	0.31
	Progressive course (dummy coded 1 = progressive)	− 1.44	3.62	− 0.05	0.69	− 4.59	2.83	− 0.19	0.11
	Episodic course (dummy coded 1 = episodic)	− 3.08	3.17	− 0.11	0.34	− 6.09	2.56	− 0.25	0.02
	Mobility	− 0.01	0.16	− 0.01	0.95	0.16	0.13	0.15	0.21
	Pain interference	0.23	0.16	0.20	0.15	0.07	0.12	0.07	0.55
	Fatigue	0.47	0.14	0.48	0.00	0.52	0.11	0.60	0.00
3	Gender (dummy coded 1 = female)	0.43	2.89	0.02	0.88	− 0.13	2.31	− 0.01	0.96
	Race/ethnicity (1 = white, 2 = person of color)	1.55	3.61	0.04	0.67	− 0.16	2.77	− 0.01	0.95
	Age	0.19	0.42	0.06	0.66	0.21	0.34	0.07	0.54
	RD number	− 6.87	1.87	− 0.40	0.00	− 4.53	1.47	− 0.29	0.00
	Time since diagnosis	0.55	0.33	0.19	0.11	0.26	0.26	0.10	0.33
	Progressive course (dummy coded 1 = progressive)	0.47	3.57	0.02	0.89	− 2.85	2.77	− 0.12	0.31
	Episodic course (dummy coded 1 = episodic)	− 1.62	3.11	− 0.06	0.60	− 4.76	2.48	− 0.19	0.06
	Mobility	− 0.02	0.16	− 0.02	0.89	0.15	0.12	0.14	0.22
	Pain interference	0.16	0.15	0.14	0.31	0.01	0.12	0.01	0.94
	Fatigue	0.32	0.15	0.32	0.03	0.38	0.12	0.44	0.00
	Peer relationships	− 0.33	0.14	− 0.31	0.02	− 0.30	0.11	− 0.31	0.01

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