Fig. 6From: Recommendations from the IRDiRC Working Group on methodologies to assess the impact of diagnoses and therapies on rare disease patientsMulti-stakeholders involvement in providing data to advance diagnostics and therapies for rare disease patients. This graphic shows the requirement for different type of data originating from multiple stakeholder sources (patients, academic research, industry and regulators) and the need to share this information to efficiently advance the development of diagnoses and therapiesBack to article page