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Fig. 4 | Orphanet Journal of Rare Diseases

Fig. 4

From: Recommendations from the IRDiRC Working Group on methodologies to assess the impact of diagnoses and therapies on rare disease patients

Fig. 4

Proposed data that is needed to define the patient journey from the perspective of healthcare providers and systems. This graphic summarizes the patient journey from diagnostic to clinical intervention, the needs at each step of this journey and the data sources and/or tools that can be used or developed to measure the impact of diagnosis and therapies on patients and health care systems

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172