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Table 5 Recall periods used by participants while completing the QoLISSY-Brief

From: Key measurement concepts and appropriate clinical outcome assessments in pediatric achondroplasia clinical trials

Recall period used

n (%) (N = 27)

Example quote

Non-specific

6 (22)

13-[12-17]-P: Recently, but also, kind of, the general picture because, again, not having much experience with the general public right now

Right now/today

5 (21)

20-[0-2]-CG: Um, I was trying to kind of think about him and his reactions and how he – his personality and how he acts today

Past week

1 (4)

201-[0-2]-CG: Just in the past, like the past week

Past 2 weeks

2 (7)

18-[8-11]-P: I was thinking about a couple of weeks ago, I think

Past month

2 (7)

19-[8-11]-P: Like, a little bit far back. […] Um, a month ago or something like that. Like, a long time ago, not, like, a week, a long time ago

Past few months

5 (21)

38-[8-11]-CG: In just the last, you know, for a while. I mean, um, say few months or something like that. In the, in the, in the present or, or near-term past. Yeah

Past year

1 (4)

15-[12-17]-P: Probably within the last year

Past 1–2 years

3 (11)

01-[12-17]-P: Mostly in the past, like, year or two

Entire life

2 (7)

05-[3-7]-CG: I was thinking about, like, his entire life here, when I answered the questions