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Table 6 Carer demographics

From: Health utilities and costs for neuromyelitis optica spectrum disorder

Characteristic Mean (%) (range)
Number 74
Mean age (range) 55 (22–79)
Male (%) 45 (61%)
Carers age profile (years)  
 20–29 3 (4%)
 30–39 5 (7%)
 40–49 8 (11%)
 50–59 31 (44%)
 60–69 17 (24%)
 70–79 6 (9%)
Relationship to the NMOSD patient  
 Spouse/partner (%) 55 (74%)
 Son/daughter (%) 8 (11%)
 Parent/guardian (%) 5 (7%)
 Sibling (%) 2 (3%)
 Other non-relative (%) 4 (5%)
Living arrangements  
 Patient lives with carer 64 (86%)
 Patient lives in own home 9 (12%)
 Patient lives in Care Home 1 (1%)
Carer employment status  
 In full time employment 27 (36%)
 In part-time employment 8 (11%)
 Unemployed and not looking for work 4 (5%)
 Unable to work due to caring commitments 15 (20%)
 On a government employment or training scheme 1 (1%)
 Retired 19 (26%)
Carer commitments affecting career  
 Yes 25 (34%)
 No 46 (62%)
 Other 3 (4%)
Reasons for caring commitments affecting work  
 Lost a paid job and still have not got another one 2 (8%)
 Changed the type of job/tasks done 1 (4%)
 Lost a paid job but have since got another one 1 (4%)
 Changed my place of work 2 (8%)
 Changed the number of hours worked 8 (31%)
 Unemployed for the last 3 months 2 (8%)
 Unemployed then got a paid job 2 (8%)
 Opted to take early retirement due to caring commitments 8 (31%)
Carers’ weekly earnings  
 None 18 (29%)
 Less than £99 9 (14%)
 £100–£199 9 (14%)
 £200–£299 8 (13%)
 £300–£399 5 (8%)
 £400–£499 8 (13%)
 £500–£599 1 (2%)
 £600–£699 2 (3%)
 £700–£799 2 (3%)
 More than £800 1 (2%)