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Table 5 Patient costs over the 3 months preceding the first questionnaire completed – totals and by EDSS score

From: Health utilities and costs for neuromyelitis optica spectrum disorder

 

Total costs

Mean (95% CR)

EDSS ≤ 4.0

Mean (95% CR)

4.5 ≤ EDSS ≤ 6.5

Mean (95% CR)

7.0 ≤ EDSS ≤ 7.5

Mean (95% CR)

8.0 ≤ EDSS ≤ 9.5

Mean (95% CR)

Travel

£69

(£49–£89)

£43

(£14–£84)

£68

(£13–102)

£56

(£3–£110)

£157

(£89–218)

Patient Costs

£704

(£217–£1511)

–

£366

(£33–£1113)

£162

(£2–£324)

£4898

(£1030–£12,984)

GP Practice

£154

(£124–£197)

£93

(£49–£143)

£151

(£110–£199

£225

(£111–£437)

£259

(£153–£419)

Other contacts

£55

(£33–£98)

£12

(£4–£23)

£36

(£19–£67)

£33

(£0–£75)

£269

(£89–539)

Tests

£78

(£61–£104)

£70

(£31–£120)

£78

(£55–£113)

£102

(£29–£189)

£241

(£124–£372)

Medications

£607

(£208–£1459)

£89

(£44–£180)

£1135

(£289–£3422)

£216

(£96–£412)

£408

(£112–£917)

A&E attendances

£70

(£44–122)

£23

(£0–£67)

£70

(£35–£117)

£160

(£0–£366)

£116

(£15–291)

Hospital out-patients

£318

(£245–£420)

£212

(£125–£323)

£322

(£201–£426)

£482

(£270–£957)

£428

(£179–921)

Hospital in-patient stay

£3954

(£509–£9221)

£23

(£0–£90)

£1436

(£22–£3778)

£4670

(£0–£13,829)

£25,951

(£0–£71,746)

Total cost

£5623

(£2096–£12,156)

£562

(£381–£812)

£3674

(£1813–£6347)

£6106

(£923–£20,562)

£32,717

(£2888–£98,568)

  1. Patient costs are self-reported by patients, and include private medication, house adjustments; GP Practice includes out-of-hours services, practice nurse and GP home visits; Other contacts include physiotherapy, occupational health, social work, counselling and psychotherapy