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Table 5 Patient costs over the 3 months preceding the first questionnaire completed – totals and by EDSS score

From: Health utilities and costs for neuromyelitis optica spectrum disorder

  Total costs
Mean (95% CR)
EDSS ≤ 4.0
Mean (95% CR)
4.5 ≤ EDSS ≤ 6.5
Mean (95% CR)
7.0 ≤ EDSS ≤ 7.5
Mean (95% CR)
8.0 ≤ EDSS ≤ 9.5
Mean (95% CR)
Travel £69
(£49–£89)
£43
(£14–£84)
£68
(£13–102)
£56
(£3–£110)
£157
(£89–218)
Patient Costs £704
(£217–£1511)
£366
(£33–£1113)
£162
(£2–£324)
£4898
(£1030–£12,984)
GP Practice £154
(£124–£197)
£93
(£49–£143)
£151
(£110–£199
£225
(£111–£437)
£259
(£153–£419)
Other contacts £55
(£33–£98)
£12
(£4–£23)
£36
(£19–£67)
£33
(£0–£75)
£269
(£89–539)
Tests £78
(£61–£104)
£70
(£31–£120)
£78
(£55–£113)
£102
(£29–£189)
£241
(£124–£372)
Medications £607
(£208–£1459)
£89
(£44–£180)
£1135
(£289–£3422)
£216
(£96–£412)
£408
(£112–£917)
A&E attendances £70
(£44–122)
£23
(£0–£67)
£70
(£35–£117)
£160
(£0–£366)
£116
(£15–291)
Hospital out-patients £318
(£245–£420)
£212
(£125–£323)
£322
(£201–£426)
£482
(£270–£957)
£428
(£179–921)
Hospital in-patient stay £3954
(£509–£9221)
£23
(£0–£90)
£1436
(£22–£3778)
£4670
(£0–£13,829)
£25,951
(£0–£71,746)
Total cost £5623
(£2096–£12,156)
£562
(£381–£812)
£3674
(£1813–£6347)
£6106
(£923–£20,562)
£32,717
(£2888–£98,568)
  1. Patient costs are self-reported by patients, and include private medication, house adjustments; GP Practice includes out-of-hours services, practice nurse and GP home visits; Other contacts include physiotherapy, occupational health, social work, counselling and psychotherapy