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Table 1 Questionnaire completeness and inclusion rates among the and CDG (ImmunoCDGQ) and control (ImmunoHealthyQ) groups

From: The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ)

 

CDG group

(ImmunoCDGQ)

Control group

(ImmunoHealthyQ)

Nº of initiated questionnaires

509

954

Nº of completed questionnaires

221

416

Nº of included questionnaires

209

349

Completion rate (%, average)

43.4%

43.6%

Inclusion rate (%, average)

94.6%

83.9%